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'One in Five Suffer Mental Illness? Baloney!' - guest blog

The phrase "one in five have a mental illness (or issue or problem)" has been used extensively for quite some time. From a public relations point of view, I can (or did) appreciate why: to demonstrate what an extensive issue mental illness is. Even if you are not the one in five, chances are you know of a friend or relative who is.

marvin-rossI first heard the term over 10 years ago when reporting on a psychiatrist lecturing doctors whom I was covering for the Medical Post newspaper. The psychiatrist asked how many in the audience had any experience with mental illness -- either themselves or amongst friends and relatives. When almost no one raised a hand, he called them dishonest and pointed out that since one in five do, it was statistically unlikely that so few of the audience would not have some personal knowledge of mental illness.

Today, that phrase is so hackneyed it's become almost meaningless. In fact, one of the editors of the Medical Post just wrote in her blog about how confusing it is. She wondered if it was even correct.

This statistic does not, in my opinion, tell us anything. It is of as much value as saying that four out of five people have stomach problems, which could range from over indulging at the all-you-can-eat buffet and being bloated for days, to having incurable stomach cancer.

In fact, cancer statistics are a good model for us to use when talking about mental illness statistics. Each type of cancer is not only different but there are differences within each type and they are thus classified internally by stages. The discovery of stage one cancer would have a better outcome than the discovery of stage four cancer. Developing a basal cell carcinoma (a simple skin cancer) and having it treated will only result in a potential return of the condition about one per cent of the time. There are no statistics on death.

Compare that to pancreatic cancer which has a five-year survival rate of 5.5 per cent. By stages, pancreatic cancer found early has a five-year survival of 21.5 per cent compared to only 1.8 per cent for that which has metastasized or spread. It does not make sense to talk about all cancers as if they are just one disease.

And the same goes for mental illnesses. So yes, maybe one in five of us does suffer at some point in our lives, but like cancer, those illnesses and the suffering they produce are not all the same.

I am one of the five. A few years ago, my car was struck on the highway by a wheel that had flown off a pickup. I suddenly went into a panic when the tow truck driver told me I could have been killed if the wheel had hit my windshield rather than my fender.

I developed a mild form of post-traumatic stress which I treated with a short course of anti-anxiety meds and by forcing myself to drive on that stretch of highway the very next day. My PTSD was nothing compared to the PTSD that an Afghan war vet my doctor was treating suffered from.

Without violating confidentiality, my doctor told me that his other patient had seen some horrendous things done to civilians in the Afghan war zone and was suffering from violent nightmares.

As bad as PTSD might be for some, it cannot compare to the horrors of untreated psychosis from schizophrenia, or the ravages of bipolar mania or depression -- the two most severe forms of mental illness.

Both Health Canada and the National Institute of Mental Illness in the U.S. recognize that it is not helpful to lump all mental health illnesses/problems together. Page 31 of the Health Canada report shows that 11 per cent have a mood or anxiety disorder or substance dependence. They then devote an entire chapter to mood disorders and an entire chapter to schizophrenia. While schizophrenia only impacts 1 per cent, it is such a serious illness that it accounts for about $5 billion annually in both direct and indirect costs. Lumping my mild PTSD in with schizophrenia is not particularly valid.

The National Institute of Mental Health in the U.S. provides some even more revealing numbers. For each category, they list total percentage, severity level, and how many are receiving treatment. So, while 26.2 per cent of Americans have a mental illness in a given year, only 5.8 per cent are severe. Of those who have a problem, only 36 per cent of them are receiving treatment. Bipolar disorder accounts for 2.6 per cent of the population, 2.2 per cent of the cases are considered severe, and while 48.8 per cent are receiving treatment, only 18.8 per cent of those with the disorder are getting minimally adequate service.

What I find concerning in these numbers (and I suspect they are the same in Canada as well) is how few are receiving adequate treatment. Each of the conditions is reported separately so take a look for yourselves. We really do need to stop talking about one in five and start emphasizing other aspects of mental illness and the lack of care.

We need to find mental illness statistics that are more meaningful than one in five. In fact, thinking about one in five may detract us from establishing a very clear focus on the people who really need help. And those people are the ones with the very serious illnesses.

MARVIN ROSS

Writer, publisher and producer of "The Brush, The Pen and Recovery," a documentary exploring "the very issue of schizophrenia, the lives of the people it affects and the role of artistic expression in their recovery."

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Invisible Tragedies Are Ignorable Tragedies

The Washington Post recently published a long and poignant feature about the emotional impact of police shootings on the officers involved. The story did a good job of correcting the distorted “cops shooting bad guys” stereotypes of the big and little screens but failed to recognize the role of treatable mental illness in setting the stage for these fateful encounters ("Officers haunted by fatal shootings in the line of duty, Feb. 9).

tyrone-collingtonThe Post can't really be faulted for the omission though. There's not a government agency that recognizes the role either.

We all know law enforcement officers have become the default mental health providers for people in acute psychiatric crisis. Officers roll when a family member with mental illness becomes unmanageable or dangerous. Officers interact with mentally disordered people living on the streets. Officers transport people in acute crisis to hospitals for psychiatric evaluation and then stay in ERs to keep patients and staff safe.

That these encounters sometimes have lethal consequences is beyond question. More than 60% of the senior law enforcement police and sheriff officials who participated in Chief of Police Michael Biasotti’s 2011 survey, “The Impact of Mental Illness on Law Enforcement Resources,” said that officer casualties result from service calls involving mental illness.

At the same time, in Portland, Oregon, the Police Bureau is under investigation by the US Department of Justice for civil rights violations because of a “significant increase in officer involved shootings,” the majority of which “involved persons with mental health issues.” Murder charges are pending against two suburban California police officers accused of beating a homeless man with schizophrenia to death at a bus station. Less sensational news reports of police-involved killings hit our radar screen every single day.

But it's impossible to identify precisely how many of the 387 Americans killed by police in 2010 were severely mentally ill or how many of the 153 American officers killed in the line of duty were responding to calls involving mental illness. That's because the government doesn’t count them. Officially, the incidents are invisible, which means mental illness is rendered invisible, and the means of preventing these tragedies remains invisible.

This needs to be corrected. Invisible problems are ignorable problems, and the role of mental illness in police shootings is ignored at great human cost. Our Preventable Tragedies Database has recorded 525 homicides since 2000 in which a law enforcement officer killed a mentally ill individual involved in a service call and 73 incidents in which law enforcement officers were killed by people with unmedicated mental illness – and the database contains only selected episodes reported in the media.

Severe mental illnesses are treatable. In Washington, D.C., and 44 states, assisted outpatient treatment (AOT) makes it possible to treat people too ill to seek care for themselves before they become a danger to themselves or others, including law enforcement.

Some number of police-involved shootings is inevitable, as are the human loss, anguished officers and families, and devastated careers they produce. If we wish to minimize the occurrence of these tragedies, the government needs to monitor the role that untreated mental illness plays in them, and communities need to use the treatment otpion available to keep those most at risk from becoming involved. 

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The Storms

There are so many dangers when a person is mentally ill and homeless, but one of the worst is to be exposed to the elements during all seasons. I have not heard anything or seen anything written about this danger, but it is very real.

valerie-foxDuring my homelessness, one of the most wretched experiences was the cold, wet windy days of winter. Never having proper shoes, I would be exposed to slush, biting cold, and some days numbness in my feet. I was lucky to pretty much always have a warm coat, but shoes were tricky for me. Not many were comfortable for me so I resorted to wearing comfortable sandals in the winter and summer. You can imagine walking through a winter storm with only sandals on my feet; yet that is what I did. I remember being afraid I would get frostbite, but then my voices would tell me I would be alright. And I continued living homeless.

To cope with the very bad weather of winter, I would utilize the Morristown Library on many a day of rain or snow or sleet. This is the same library that was sued by another homeless person. I was never made to feel as an outcast. I would sit through a storm; or if I could find a quiet place, I would close my eyes for a time – not sleep but rest. No one gave me a hard time. I was never asked to leave, and I was afforded a few hours of warmth and safety.

After realizing the winter in Morristown would be very difficult, I gravitated to New York where I knew I could find shelter in terminals; and this is primarily where I spent the winter. I remember one of the reasons I decided to seek shelter in a long-term care facility was because I knew I could not face another winter living the way I was.

To close, I will say I never did get frostbite. However, my feet remain very sensitive; and I have to be very careful about shoes I choose. It is many years after homelessness, and my body is healthy. I am very thankful to a higher power for seeing me through that time and allowing me to live a good life in mental health.  

VALERIE FOX 

(a person in recovery) 
Reprinted with permission of Valerie Fox
This e-mail address is being protected from spambots. You need JavaScript enabled to view it  to email Valerie Fox.

For more about the role of libraries as shelter for homeless individuals with mental illness, see Unintended Shelters.

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